Keenan Cahill – The Real Story About My Battle With MPS-VI – WGN Chicago News Story

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Keenan Cahill – The Real Story About My Battle With MPS-VI – WGN Chicago News Story

“http://Lybio.net
The Accurate Source To Find Quotes To Keenan Cahill.”

[Keenan Cahill – The Real Story About My Battle With MPS-VI – WGN Chicago News Story]

[Commentator]
Keenan Cahill was 13 when he lip-synced and serenaded me in the weather office almost 2 years ago. It was his first live television appearance and as you can clearly see, there is not a self conscious bone in his body. It was Katy Perry’s Tweets about Keenan’s version of her Grammy nominated hit Teenage Dream that were a game changers!

[Keenan Cahill – Clip – Teenage Dream]

[Keenan Cahill]
First she Tweeted about the video saying: “Your my Teenage Dream”. I was like, okay, whatever, some video! Then she Tweeted @KeenanCahill I heart you! I was like, okay! Ah, that maybe mine!

[Commentator]
Katy Perry sent him a signed lithograph of Teenage Dream album cover, one of only 5 in existence.

[Keenan Cahill – Clip – 50 Cent Put It Down On Me]

[Commentator] Source: LYBIO.net
Keenan’s YouTube Channel, BeenerKeeKee19952, now has scores of videos and millions of views. But is was this video that captured our attention.

[Keenan Cahill]
I had brain stem surgery (turns around to show his neck area)

[Commentator]
At birth Keenan appeared to be perfect, with a big smile and shinny red hair. But his one year check up revealed cooking in his hips and he’d had fallen off the height chart.

[Doctor Barbara Burton]
As he wasn’t growing as well as another child and there were some changes in his general appearance so that ultimately led to the diagnosis.

[Doctor Barbara Burton] Source: LYBIO.net
So how you doing huh?

[Keenan Cahill]
Good

[Commentator]
Doctor Barbara Burton says Keenan has a very rare genetic disorder mucopolysaccharidosis, MPS-VI for short. It affects every one in 500,000 individuals and there is no cure.

[Mother]
The only thing I can remember is that they gave me a pamphlet of a boy on the cover and it said Hurler and a boy on the cover that said mara_____may. And to be honest with you, both of them looked so scary.

[Commentator] Source: LYBIO.net
In the mid 90’s a bone marrow transplant was Keenan’s best chance survival, by replacing the enzyme that protects his bones, joints, and vital organs,

[Nurse]
Alright, my man! 122 4′

[Commentator]
Today, this is how the Youtube sensation spends his Thursdays. A four hour long enzyme infusion at Chicago’s Children’s Memorial Hospital is his best hope for halting the progression of the disease

[Nurse] Source: LYBIO.net
And you’ve been well, no problems?

[Commentator]
The drug is one of the worlds most expensive, $350,000 dollars a year!

[Keenan Cahill]
I’ve had 10 surgeries so far, knee surgery, brain stem surgery, ___ surgery, hand surgery,

[Commentator]
And he’s scheduled for another surgery on his right leg and hip as soon as school is out.

[Mother]
We were pretty private with his disease, I didn’t feel that we needed to talk about that or educate anybody at the time, and there has been some nasty comments (Ffaban19997: ugly noob) (0000tonc: a little advice, making youtube videos is not for midgest thank you for your attention) (i think people only watch this cause hes weird i mean anyome can lip sync any day but hes weird fugly child) I – I wanna stick up for him

[Commentator] Source: LYBIO.net
The comments come in under his videos but in typical Keenan fashion he lets them roll right off.

[Keenan Cahill]
I just don’t listen to them, its kind of just what you have to do

[Fan]
Can I get you autograph?

[Keenan Cahill]
Sure

[Commentator] Source: LYBIO.net
Keena uses friendships that he has made at Childrens to keep him motivated

[Keenan Cahill]
I have this person, she’s pretty sick, she’s 2 years old and her name is Gia and her mom says she constantly watches my videos, that’s that’s one that’s filling my inspiration

[Commentator]
Back now at home in Elmhurst, Keenan’s famous bedroom is his recording studio, his pet shop, (hedgehog)

[Speaking to Keenan in his room] Source: LYBIO.net
Now that’s a hedgehog!

[Keenan Cahill]
Yup!

[Commentator]
And his hang out with John Arcaro, who can’t believe what’s happening to his friend since first grade\

[John Arcaro]
Its almost like is unreal that he’s saying I went over to France and also to L.A. to Tampa, its like, I can’t believe it, its crazy, its awesome for him

[Mother] Source: LYBIO.net
He’s so lucky, he’s achieving his dream just everyday. You, just take it as it comes, you know if its not there tomorrow at least we’ve had the experience

[Commentator]
So as Keenan texts his agent, playfully fights with his 9 year old sister Katherine,

[Sister]
(taps Keena on the shoulder annoyingly)

[Keenan Cahill]
You are, I’ll hit you right now

[Commentator]
And waits for his next celebrity phone call, he’s living his own version of Teenage Dream

Source: LYBIO.net

Keenan Cahill – The Real Story About My Battle With MPS-VI – WGN Chicago News Story. [Keenan Cahill]: I’ve had 10 surgeries so far. [Commentator]: The comments come in under his videos but in typical Keena fashion he lets them roll right off. [Keenan Cahill]: I just don’t listen to them, its kind of just what you have to do. Complete Full Script, Dialogue, Remarks, Saying, Quotes, Words And Text To BeenerKeeKee19952 – The Real Story.

On LYBIO.net Transcripts, Speeches, Text, Words, Quotes and New Reading Content. http://www.lybio.net


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Comments on Keenan Cahill – The Real Story About My Battle With MPS-VI – WGN Chicago News Story Leave a Comment

November 23, 2011

Eloghosa Adolor @ 9:17 pm #

keep it up
youll be hearing from me real soon bro!!!1

January 1, 2013

melissa @ 7:39 pm #

i would like to meet you one da your awesome and funny and dont listen to what people say be yourself thats what makes me laugh

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